I have enjoyed the information sharing and support. There seems to be a wide variety of health issues but D is the most discouraging thing people seem to be dealing with and pain.
It's good to find somewhere with all the information I needed in one place. It helped me enormously when I was struggling to get the help I needed from my doctor.
There is a wealth of information on your site and I found it particularly helpful to read the stories from people who I know went through the same thing as me.
I've found the site very informative and it helped me to better understand my condition just after I'd been diagnosed.
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Bile Salt Malabsorption affects everyone differently. These stories, written by members of the BSM Facebook group, show how they came to have the condition, how it developed, how it affects them now and how they cope with it on a daily basis.
well but the attacks continued. Over the following years I was told I had Irritable Bowel Syndrome and Gastro oesophageal reflux disease. Given omeprazole, I was discharged to get on with it. In 2000 the upper right quadrant and back pain were bad again, and I nagged my GP to refer me back to the gastroenterologist. After an X-
Although I hoped that was the end of it the diarrhoea continued. I began to
Although my symptoms began before 1990, they were easy to put down to food poisoning or a virus however, after a hysterectomy, I began to notice a change in the frequency of my attacks of diarrhoea. Alongside this I started having upper abdominal pain referring to my back, until one day in 1994 I was alarmed to wake up with jaundice. I had gallstones with obstruction. I saw a gastroenterologist who told me that I needed a cholecystectomy.
A few months later I had a severe attack and was admitted as an emergency with pancreatitis and jaundice. Within a month I had the operation to remove my gallbladder, and thought all would be
feel generally unwell, but still was treated for IBS. In 2011 I was admitted with severe dehydration and told I had post cholecystectomy syndrome, and to stop eating dairy foods and have a low fat diet -
In 2014 the diarrhoea and abdominal pain became so bad I was unable to leave the house and I was incontinent on several occasions, I just couldn't get to the toilet quickly enough. I had been seeing my GP quarterly for monitoring of another health issue and mentioned it again to her, explaining that the diarrhoea was yellow and mostly water. She suggested I may have Bile Salt Diarrhoea, and immediately arranged blood and stool tests. When these came back negative for infection or Inflammatory Bowel Disease, she suggested a trial of Questran Light, which binds to bile in the bowel and reduces irritation which causes the diarrhoea. It took me a few weeks to summon up the courage to try it, and I had been on this site for information and inspiration. I started with one sachet per day then increased to two. It took a while to get the timing right, and to adjust to the medication, but I can say it has made a huge difference. I am no longer afraid to go out, and I can even eat out with confidence.
The forum has made an enormous difference too. Through all those years I felt totally isolated and began to doubt my sanity. I had the impression the doctors felt I was imagining the symptoms or that I was neurotic. I had been offered medication for depression and anxiety, which I refused as I knew this was a physical problem and despite my best efforts I had just gotten worse. It was liberating to find others going through the same or similar problems, many even worse off than me. I have been totally honest with my GP, and now perhaps someone visiting the practice with the same problems will not have to wait so long.